Thread: We All Must Support One Another

4/18/2008: Anyone who has ever worked closely with loved ones who believe in only alternative blood therapy: ie: no blood at all to be used; realizes and has to accept that we are viewed by others in the World of Medicine and Politics and General Public, as persons to be wary of and even considered dangerous and extremely stupid-AND we must realize that this is because they stand United to protect their stance of Pro-Blood use.
There are many in the practice of Law that will pursue Doctors, Nurses, and, Midwives, anyone they can cause problems for, that support the practice of NoBlood with any medical health problem. We have to remember that first and foremost, We are American Citizens and are protected by Our American Federal Constitutional Rights. It is true that any hospital can administer blood to us anyway, by finding someone or a court that will accept the responsibility for the patient-and that is our responsibility to consider and prepare ourself for, when No-Blood products don't work, that is exactly what many hospitals have done.
Many Doctors that work with religious groups that don't accept blood transfutions will tell us that they won't let any blood be given to us, but, I have personally known of situations that were out of everyone's hands, and, Doctors who claimed to be fighters for us, just handed the Person over for a blood transfusion. Just prepare yourself for any situation.
Recently I found myself in a situation that I didn't snd still don't have enough support for, it took my Daughter by surprise and she was barely able to contend with the expected emergency problems. In the emergency room recently, 3 vials of blood were taken from me, yet, when I asked for a carboxy-hemoglobin to check for blood gases, (we have lived through at least 4 fires in our area), the doctor refused. So, with all the signs of dehydration and severe, constant pain I have still been going through, I have no blood-gas to start a foundation with for this problem.IAlthough I was taken there by ambulance 911, I was given no iv's through the entire problem. They treated me like I was faking for a fix-the doctor had the audacity to say I was "hostile" because of the way I sounded when I asked him for a second opinion-which he refused. Ever been in such severe pain you have to struggle to push words out? Doesn't sound pretty but it ISN'T hostility-They marked a box with the word "Psych" and "Suicide" as well! I am upset and scared. The doctor told me that I didn't have anything but constipation when my xray showed heart enlargement with aorta appearing "tortuous": Impression: Constipation, cardiomegaly, yet, he only told me constipation. My bloodwork, which he altered, showed infection, yet he never told me or prescribed an anti-biotic.(WBC:13.5)with a high platelet count and lowered RDW-CV (12.5) with Neut ABS#9.7 (High) . I also havea a 1 cm. cyst on my Liver. I have been waking up with severe spasms of my calves, all the way to my thigh in my right leg. I can't stay still for a few minutes due to the pain, without wiggling around and/or crying out in pain. It goes away at times but that is only because I have been under treatment by a Neurologist that has me under prescription for pain management already. Previous to this event, which began on 4/13/2008, I had weaned myself to not using the pain medication but maybe 1-2 times a day or every other day, and no muscle relaxant, and ibuprofen (pretty regular). I was active, contented, and began a job recently. Now, I am on all three medications and have to be careful because the pain is so constant, it makes me want to take more. I have extreme gas at both ends and the symptoms are like a gall bladder attack only I have no gall bladder, Dr.Ron Lapin, noblood pioneer surgeried that out in the 70's. I have alot of swelling in my abdomen but I think it is the gas. I know Loma Linda is connected to this because they have their name on my entrance papers. My Daughter's co-worker is also a student at Loma Linda and has called to talk also. I don't approve of forced research, I don't know how I can even determine if they have me on someone's list there, unless they have public disclosures somewhere. If anyone knows about that, please leave me a note here or send a private email at usadmbd@yahoo.com.
Everyone of us that even posts a word on this web-site are watched by those that hate persons who don't take blood transfusions-and-we MUST stand United, as a support for each other.
Part of this is venting over the situation I just experienced, does anyone else have anything to say on this subject? Some encouragement would be welcome, I am worn out from the pain. 21st Century-Delores Doyle. end message.

Oh my...I just read your situation above and feel so sad for what you had to go through. I wonder how doctors would feel if they or their family members were to go through what you did. They can "dish it out" but I bet they couldn't take it. I always wonder how doctors feel when we ask for a second opinion. Do they feel we are questioning their expertise? Or can they look at it as "two heads are better than one"? No wonder people are turning to the Internet, like signing onto this site, to better educate themselves before succumbing to any doctor's treatment suggestions and at times demands.

Sorry you had to go through such an experience. Hopefully you recieved many private emails to help you cope and deal with this trauma. Interestingly, as patients we have the right to ask for second opinions. Doctors may not agree but they should comply.

Take care,
Richard Casas

Granted, all of us have the right to a second opinion, but not all doctors are created equal. I say this from personal experieince as I do work in a medical environment, primarily mental health.

Unfortunately, I find that there are some doctors who seem to think that no one should question their definitive diagnosis, especially with patients in their care. They either refuse to give a referral or "fire" the patient. I have always encouraged patients that they are the ones to "hire" their doctor of choice. If these professionals are unwilling to encompass an all around treatment plan for said patients, than it is any patient's right to "fire" that doctor. Especially is this so when a patient's religious convictions are not respected, primarily having to do with the desire not to receive blood.

I truly feel for patients who are in need of quality care and for some reason are unable to get this type of care. (especially with substanced induced disorders, NOS). Granted...a lot of it stems from the patient's perspective of how "quality" care is defined but not to refer someone for a second opinion or to somehow allow the patient to think that their treatment care is to be rigidly imposed does not bode well for the majority of doctors, nurses, or anyone else tied to the medical aspect of patient care who genuinely have their patient's health interest at heart.

I applaud any MD, DO, RN, PA, etc., who is willing to listen to the research a patient has initiated upon themselves and can incorporate, within their zone of treatment comfort, some of the suggestions offered. In this regard, I am quite fortunate to have a family physician who is willing to listen/learn that there could be another treatment avenue to be explored, especially when it comes to alternative healthcare. After all...total patient care includes the all around person and not just the physical symptoms being addressed. The spiritual aspect, especially the patient's belief regarding his relationship with his God, contributes enormously to the mental health of said patient.

I appreciate patience initiated when reading my response. Perhaps working where I do has allowed me to become a very strong, and sometimes tactless, patient advocate. I have always wondered whether I should apologize for this. The answer - "No." (At least, not yet.)

Hi Sybille, Thank you for reviewing and commenting on the various threads on this forum. Thank you for being a moderater. I appreciate the way you professionally and tactfully have responded to various situations on this site. I only wish i could be as good with words as yourself.

My comments were directed at 21st Century Delores Doyle. She certainly had a negative experience getting the care she so desired.

I always encourage patients to excercise their patient rights but to be careful on how they communicate with the professionals who are caring for them. The last thing someone wants is to have MD's and staff hardlined against them because of communication issues.

In part here are some patient rights here at my hospital and no doubt federal rights.

1) Patients have the right to have considerate and respectful care and to be made comfortable. You have the right to respect for your cultural, psychosocial, spiritual, and personal balues, beliefs and preferences.

2) You have the right to effective communication and to participate in the develeopment and implementation of your plan of care. You have the right to participate in ethical questions that arise in the course of your care, including issues of conflict resolution, withholding resuscitave services, and forgoing or withdrawing life-sustaining treatment.

3) consent or to resfuse to a course of treatment.

4) request or refuse treatment, to the extent permitted by law. However, you do not have the right to demant inappropriate or medically unnecessary treatment or services.

5) reasonalbe responses to any reasonable reuqests made for service.

6) appropriate assessment and management of your , pain information about pain, pain relief measures and to participate in pain management decisions. you may request or reject the use of any or all modalities to relieve pain, including opiate medicaiton, if you suffer from severe chronic intractable pain. The doctor may refuse to prescribe the opiate medicaiton, but if so, must inform you that there are physicians who specialize in the treatment of severe chronic intractable pain with methods that include the use of opiates.

The bottom line is that patients and doctors need to work closely together to determine the best course of treatment for each patient and their particular circumstances.

Thanks
RC