New: Possibly Contracted Disease from Transfusion

This is a discussion on New: Possibly Contracted Disease from Transfusion within the New Members forum; I believe I have contracted a disease from blood transfusions (Not yet verified). I have ...


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Old 07-09-2009, 11:56 AM
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Unhappy New: Possibly Contracted Disease from Transfusion





I believe I have contracted a disease from blood transfusions (Not yet verified).

I have heart disease (Left main artery, CABG and Stents) and bleeding somewhere in the digestion (never found where --can drop 8 points in a week).

The bleeding causes severe anemia which causes more heart problems so doctors prescribe blood transfusions quickly for me. I've had 15 units this year. Plus weekly iron infusions and procrit shots to prevent having more blood transfusions.

I am now in terrible pain. Every bone in my body aches. I'm on pain killers daily that don't help much. I read a few cases online where people had similar pains after blood transfusions resulting in Hepatitis or Lyme disease.


Waiting for doctors to start testing for answers. Glad to find this site. Wish I would have found it few years ago.

My primary care doctor is VERY SLOW to act. Waiting over a week for him to view old blood tests.

Any advice?
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Old 07-10-2009, 12:02 PM
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Sounds like a difficult situation. Have you considered finding a different doctor who might be more proactive in your care? If you don't find what's causing the bleeding, you will never get out of the blood transfusion situation you are in. Iron and procrit can help a patient who is not bleeding, but it takes time and if you bleed, any gain made by the procrit is erased by the blood loss. Perhaps a hematologist would be more helpful in controlling your anemia and ordering the necessary tests to diagnose your illness. You should not have to wait a week for blood test results unless they are doing specialized testing, as in factor deficiency. Hope you find the cause of your bleeding and get this health issue resolved.
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