Bloodless Heart Transplant

This is a discussion on Bloodless Heart Transplant within the Medical Conditions and Treatments forum; I am a JW and I am looking for a Hospital that will perform a ...


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  #1 (permalink)  
Old 05-20-2004, 01:15 PM
matthew
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Smile Bloodless Heart Transplant



I am a JW and I am looking for a Hospital that will perform a bloodless heart transplant. I am 34 years old and I am in congestive heart failure. I have a congenital heart defect(transposition of the great vessels) and in 1978 Denton Cooley performed the mustard procedure on me. I now have an ICD and am on disability. Thank you for your time.
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Old 05-21-2004, 01:44 AM
Al Zaragoza
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Heart transplant

Try calling USC Hospital at 213-442-5263 and speak to Randy Henderson. He is a good resource for this.
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Old 05-21-2004, 01:46 AM
Al Zaragoza
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Wrong Phone Number

OOPS!! My mistake. That phone number should be 323-442-5261. Try that instead. Hope all goes well for you.

Al Zaragoza
Las Vegas, NV
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Old 05-21-2004, 01:48 AM
Al Zaragoza
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Wrong again and I am VERY tired. Final try: Number is 323-442-5263. I'm going to bed.
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Old 05-21-2004, 11:16 AM
jvarisco
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Matthew,
Bloodless heart transplant is still being considered by St. Luke's. You can give me a call and I can work with the transplant committe there. My number is 888-411-7527.
Look forward to hearing from you.
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Old 04-03-2009, 12:43 AM
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So you have Jessica Verisco's number?

In case you don't here is the info on a Dr. Scott Scheinen at St. Joseph's in Houston, TX"
1315 St. Joseph Pkwy, #1306, Houston, TX 77002,
713-756-5314 dr ph
713-763-4511 jessica's pgr.
218-705-6462 jessica's cell phone
hope this helps
It's St. Joseph's Hospital in Houston TX
www.texassurgical.com
Also I just spoke with Randy Henderson this afternoon from St. Vincent Medical Center and his number is (213)484-7060
I was told that at this facility they do only Kidney and Pancreas Transplants or at least that is thier specialty.
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Old 04-25-2009, 11:02 AM
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Smile Sorry to hear about your heart

Quote:
Originally Posted by matthew View Post
I am a JW and I am looking for a Hospital that will perform a bloodless heart transplant. I am 34 years old and I am in congestive heart failure. I have a congenital heart defect(transposition of the great vessels) and in 1978 Denton Cooley performed the mustard procedure on me. I now have an ICD and am on disability. Thank you for your time.
Matthew,I just read your post regarding the bloodless heart transplant. I was wondering, how long has it been since you where first diagnosed as going into "Congestive Heart Failure" until you were told you needed a heart transplant? Also, what city do you live in? I am asking these questions because I am in need of a bloodless heart transplant too and I am working TIRELESSLY, trying to get people like me and you the help that we seek.It has taken me 10 years to find even a Cardiologist (Adult) that is, that will even agree to prescribe me the blood pressure and beta blockers that I require to survive on a day to day basis.I am down to stage 3 of the NY Medical Associations levels of heart failure. There are only 4. I am also on disability and am working with Larry Eitel on this website to make it easier to even communicate to a doctor what you need.I hope you have found it easier to find help than I have and I welcome any information that you have regarding a transplant for my information as well as others around the world that need HELP.DanaWard
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Old 05-03-2009, 08:08 AM
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Dana-

My son was in the same position as you a few years ago, he also has a congenital heart defect TGA, thankfullly the right medication has helped and he is no longer on the transplant list. The problem with a transplant in people like yourself and my son is that due to previous corrective surgery the scar tissue and adhesions from the previous operation make it a very high risk of bleeding from the adhesions, add to this the fact that there is not many donor hearts it becomes a real problem for the doctors to risk a heart. With the advances in bloodless surgery I am sure this will be one of those areas that will be overcome as the final frontier of bloodless surgery, however it takes a team that is willing to take risks and lead the way, until then it will be an uphill battle. I tried many hospitals around the world and I believe this operation has not been done bloodless. You will find many will say even on this board that bloodless heart transplant has been done but we are talking here of a person who has not had previous heart surgery where there is no problem of adhesions. I would not give up hope please keep trying, it is not as though it can't be done its finding the team that is willing to break new ground.
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Old 05-19-2009, 02:38 PM
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Matthew, did you ever contact Houston? Because I am investigating Miami at this point. Houston turned me down. Too Risky.
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Old 05-19-2009, 09:30 PM
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Quote:
Originally Posted by matthew View Post
I am a JW and I am looking for a Hospital that will perform a bloodless heart transplant. I am 34 years old and I am in congestive heart failure. I have a congenital heart defect(transposition of the great vessels) and in 1978 Denton Cooley performed the mustard procedure on me. I now have an ICD and am on disability. Thank you for your time.
Might be a stretch, but have either of you thought about India? Especially if cost is a factor.
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