I definitely am not a porphyria expert, and after reading your response, I decided to do a little self educating and found a great resource site on the internet at Welcome to the American Porphyria Foundation. The site also has a listing of Specialist in the field. There were a couple of doctors listed in California, but unfortunately none in Oregon. There is one physician, Karl Anderson at the University of Texas/Galveston who will do telemedicine consultations. The website explains how to go about getting such a consult set up. Hope this information is of help. I certainly learned alot about the condition, testing and treatment.