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Old 06-22-2008, 11:31 PM
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Blood transfusions are not indicated in the treatment of the porphyrias. Rather, a drug called panhematin is the preferred treatment. Panhematin is an iron-containing enzyme that inhibits the production of the toxic porphyrins. Although it is not blood it is derived from processed red blood cells, and so may be classified as a fraction. The use of this product to treat your disease, therefore, may or may not sit comfortably with your religious conscience. This drug should only be used by physicians experienced in the management of porphyrias in hospitals where the recommended clinical and laboratory diagnostic and monitoring techniques are available.

See Panhematin (Hemin) drug description - FDA approved labeling for prescription drugs and medications at RxList
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