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in response, I failed to mention I have hereditary co-pro porphyria. My mom was 57 percent deficient in the enzyme. I am about 20 percent. The concern with epo. is triggering the porphyria. I tolerate 100 mg iron at a time The infusions require steroids and tagamet and tylenol. I have seizures from to much iron at a time. I was getting an infusion a week, now its about every 2 weeks. I have a blood doctor and a gi doctor. I went t ohsu once to a blood doctor. Still no answers.I am now at 12 hgb. and 36 for my crit. I will loose this in about 3 weeks. I loose about 1 point a week.Thank you for any suggestions you have.Doesnt the body recycle iron molecule? .Mine does not do that? thanks for any input sherry
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